A Head Full of Pain

On the Wednesday after Labor Day, I got up and got ready for work. Jeremy had already left to workout, so I had a fairly silent preparation. I thought my foggy head was just from it being 5am and the remnants of a bad headache I had had the day before. As I walked out the door to get to the car, I was reminded that sometimes headaches don’t just go away; they erupt.

I sat down in a lawn chair we have just outside the doors and the world spun. My headache had morphed into a migraine. Now, I don’t get migraines extremely often, but when I do, they are not usually put at bay by a mere Excedrin Migraine, which I did take immediately hoping that it would put me back on my feet. I ended up having my hopes dashed an hour later and informing my employer that I would not be going to work that day. I then crawled back into bed and slept for most of the rest of the day.

Knowing what a migraine feels like often gives me a small bit of insight into how Jeremy and others with bipolar and borderline personality disorders must feel sometimes. I’m lucky; migraines and severe headaches are accepted illnesses and I can at least get some sympathy from people.

There’s always someone that doesn’t get it, though. Where they get “We all feel sad sometimes” or “I have a hard time relating to people sometimes too”, people with migraines hear “Yeah, I get headaches all the time.” Note: Bipolar Depression  and Borderline Personality Disorder are not the same as sadness, just as headaches are not the same as migraines.

Let me show you a physical example: You have been reading my blog. I assume that most of you are reading with a fair amount of ease, maybe with glasses, but for the most part, it’s comprehensible. Now, look at this: 785a97667c645119a46dc4911af7088f--migraines-quotes-chronic-migraine-quotes

Do you see the difference now? And this examples is if the migraine is a minor one. When mine are severe, the center of my vision is entirely fogged out.

Years ago, I found a video that helped me understand a little bit of what Jeremy goes through. When I showed him the video, he told me that it was the closest he’d seen to capturing how he feels and it’s still a tad off the mark. Check it out here: What it Feels like to Have Borderline Personality Disorder.

I didn’t really get it until I watched this. Then, I went on a YouTube binge to try to understand, to try to find treatments that might help, and to reach out to those that I finally felt that I might understand a little better. I got it now that his outbursts, mood swings, and self-deprecation were just an outward expression of his head full of pain. My outward expression was sleeping, dimming the lights, and putting on my fuzzy sweatshirt. On days when his illness was taking hold, he became sullen, lost control of his voice inflection, and was unable to sit for more than 5 minutes. When mine is bad, I can’t get out of bed, cry a lot, and ask him to put on headphones instead of sharing his videos.

Either way, invisible illnesses are harder than they look. Those of  us that have them often fill ourselves with pills to be able to make it through a day at work (as I am doing today, since the remnants of my reasons for staying home are sticking around today). We may take longer breaks than others. We may need more praise and motivation speeches. We don’t want pity and we might just want you to listen for a little bit when we’re tired of explaining that our bodies and brains are rebelling against our intentions. Thank you to those that try. Thank you for reading this post, whether you’re struggling with it or it comes easy to you. I know better than many how hard reading can be some days. Health and happiness to you all; we’ll see you on the road.

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Full-Time Times

This will be quick. I’m still reeling!!

Ok, first off, I’m sorry to our loyal followers for not writing more in the last month. IT’S BEEN CRAZY AROUND HERE!!

Let’s start with The Girl Next Door. She’s full and being worked on as much as possible. Jeremy has been spending days with Jason, our new neighbor, working on the engine, the electrical, and the fuel issues. She’s moving better than she was when Jeremy crawled at 20 miles an hour into Jason’s driveway; she’s also still not in what we would call “mobile” shape. She moves, but not too quickly. I think Jeremy said he got her up to 35 miles an hour. They’ve changed spark plugs, checked for fuel vacuums, and emptied the old gas. They’ve also re-wired quite a bit of our internal work, including the male end of our 50 Amp electrical hookup, which promptly created some sparks. Now our microwave doesn’t work anymore, but there was no further fire. Thank God.

We’re still not “moved in” either. We haven’t quite had time to work on going through all of our stuff stored at Jeremy’s parents’ place. So there is quite a bit of stuff that is stored there that we want to fit into the RV. That being said, it might never happen. She’s not quite organized inside yet. We have stacks of clothing and stuff on the kitchen table, the couch, the doghouse, and in the passenger seat. Any advice would be helpful. Even more helpful would be a life coach or something to come and go through this stuff with us!!

Jeremy is still working on the rollercoaster of Lamictal reintroduction. This medication works well once it’s up to therapeutic level. The problem is that he has to go very very slowly toward that level because of his rash last July. We’re hoping he’ll be all the way up to it by June. Right now, he’s on the down turn from the most recent increase. By next week or the week after, he should be stabilizing again and we’ll see where he’s at with is moods. In the meantime, he’s riding a wave of cycles, anxiety, and coping skills.

My job change went smoothly for the most part, but I’m now waking at 4am, driving Ruby over an hour one way, and not getting home until 6pm. Most days, I’m tired.  Even though I’ve done this job before, those are old brain cells that haven’t been used in 10 years. Even though it’s a change, I still feel like going back to the QA job is like moving home. There’s a familiarity of the lab; over half of the people in the lab are the same people that were there before. Every single shift has someone who was there when I was there 10 years ago. Nonetheless, I’m enjoying being back on someone else’s payroll.

It’s also a huge change in routine for getting dressed in the morning. I can’t stand in the bedroom anymore, so have to dress in the living room in the mornings. Eating is a change; I’m very close to the bedroom, so I don’t want to use the blender for fear of waking him.  Showering and bathing is different too; we do not have water in her yet for fear of freezing, so we need to go to the gym or the neighbors’ place to shower. Just getting out my clothes has changed because I need to do it the night before so that I don’t have to crawl all over Jeremy every morning.

I’ve been missing meds right and left. With the change in routines, I forget almost daily. Because of this, my depression symptoms have been going a bit haywire. And I’m drinking coffee again too. I need the boost in the morning to be able to drive. Luckily, I found a great recipe for Unicorn Fuel, so I don’t need to add sugar to my diet to enjoy my boost. Food is a hard thing to keep up when there’s this much spinning around, but we try when we can.

We are both in deep athletic training right now too. Jeremy is getting ready to do the Eau Claire Half Marathon in May. My next race is June 10th in Chicago for the Spartan Sprint Obstacle Course Race. Running has become a regular event around the house. Being parked in a new town makes it interesting to find trails, roads, and routes that work for us. I have an extra bonus of strength training for my race too, so I’ve added some of that at my new job; they have a gym available to me.

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Jeremy took The Girl Next Door once to dump and checked out how she’ll look when she’s finally parked in one of our summer spots. This round barn is one of the coolest back drops we didn’t ever imagine would be a parking spot.

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All in all, this new life is working for us, even if we are a little frazzled. Once we’ve gotten in a groove, things will be easier. We are still in the stage where you don’t know where anything is because you just started keeping it there. We’re learning how to prepare for moving her, we’re learning how to take care of the business without me there, and we’re learning how to interact with each other when we’re exhausted from our busy training schedules. We’re both still very happy we made this switch.

Now, as Jeremy plays with the neighbors’ dogs (Dying of cuteness!!), enjoy your life, live healthy, and we’ll see you on the road.

Jack is not the answer

Alcohol is a central nervous system depressant. The reason you feel so good when you drink alcohol is that your heightened state of anxiety or inhibitions is reduced. This helps the brain and body to feel calm. Go too far and the average person deals with majorly reduced function in your body; slurred speech, tripping, blurry vision, and reduced mental capacity are very common. There can even be a reduction in respiratory and circulatory function, leading to a slowed heart rate, dizziness, and possibly death.

There’s another side effect for those of us with recurring depression: the depression can recur because of the alcohol consumption. It’s usually pretty short lived if you continue taking your antidepressants, but for some it can lead to a cycle of feeling good while drinking and drinking again once the depression comes back.

If you couldn’t guess by now, I had some drinks this weekend. A few were Friday night and another Saturday afternoon. By Sunday around noon, I was sad sad sad and hurting. The upside was that I knew what caused it. Bad food and added alcohol were a bad combination for me, I found. I only really knew because I’ve been eating so well for the last 2 months.

Back in January, Jeremy and I started a new lifestyle with our food. We decided to begin eating a mostly paleo diet. This isn’t a diet in the sense that we’re going to do it for a while and once we’ve lost some weight go back to the way it was before. It’s our diet in the sense that it’s what we eat and what we plan to eat in perpetuity. This means no sugar, no grains, no alcohol, and no mass produced dairy.

It’s funny how easily this transition went for us. Yes, there was 5-6 days of “withdrawal” symptoms, but all-in-all it was easier than any other “diet” plan we’ve been on. Part of the reason is that we are both meat eaters and love vegetables. The hardest part for me was chocolate; for Jeremy, it was eating fast food. And now neither one of us craves either of those.

I’ve been craving salty and spicy things. Jeremy NEEDS his unsweetened cranberry juice and bulletproof coffee. So, when the opportunity for bad food came up, we both took it. We are paying for it this week. Thankfully, we’ve been able to get back on track and feel a little better. Jeremy went for a few runs to sweat out the nasties. I have been drinking a lot of water and eating as clean as possible. It’s funny how fast things turn around when your body knows how to clean out, too.

The way the “cheating” on a more strict diet effects you can be beyond the physical responses your body has. Depression can recur because of the feeling of failure. I know that Jeremy and I both had a downward turn in our self-esteem when we weren’t perfect. We needed to be reminded by each other that this isn’t a one time thing; that this is a lifestyle change. We needed to be reminded that it was ok to make mistakes and that it was ok to have our favorite “cheats” from time to time. That 80/20 balance of being able to still have a higher quality of life was more important than the bite of chocolate we just had or the piece of bread or the drink of alcohol. When you’re battling with a mental illness, falling from self-esteem can be a hard spiral to get out of. We need to be careful how we speak to ourselves and to each other. As the years have gone on, both Jeremy and I have gotten better and better at discussing these types of things in encouraging ways.  I’m grateful to have him to help me up when I’m down and to work together on life.

Just dealing with my depression, our self-esteem issues, and our athletic pursuits has been enough to motivate us to keep our food under control. What do you do to keep yourself feeling well and performing at your peak? We’re looking forward to hearing your thoughts. We’ll see you on the road.

The end of Writer’s Block

I wrote the rest of this post yesterday here. Thank you again to Bill for giving me a topic I could bite into.

Back to my thoughts on the subject of drug use and mental illness sufferers.

Speaking of sufferers, I am one. I have dealt with a cyclical recurrence of minor depression through out my adult life. Judging from the statistics above, that set me up to be very likely to become someone who used and even abused recreational drugs. Bill wanted to know how I’m not someone who’s done much use. For a background, I am a social drinker with 1-2 drinks a week average. I spent about 6 months smoking an average of one-two cigarettes a day which I quit cold turkey and never went back; it isn’t a lot, but it was enough to be addicted and smell like smoke for weeks. I have tried marijuana once and did not like it in the slightest. I have had only minor pain pills given to me for pain relief after the few surgeries I have had.

So, my use never has even really bordered on abuse and one could say that I avoided a significant use even to be called more than average. How did that happen? I can say that when my symptoms of mental illness came on is a big part of it. My most harrowing bout with depression was when I was 16. I feel I became a different kid at that time. And, by that time, my frontal lobe of my brain was already developing at a nice pace.

You see, I was pretty lucky in my upbringing. My parents kept me busy with mind-occupying challenges, body-wearying activity, and spiritual direction to something higher than myself. They also loved me without condition; no matter how bad I screwed up, I always knew that they loved me. Those aspects of my life prevented me from even being exposed to drugs much until I was in my mid-late teens. I couldn’t steal cigarettes from my mom because she didn’t have any. I was so busy with school clubs that I didn’t even know where I could have gotten any drugs, much less how to use them. The only thing I was exposed to was alcohol, as 95% of kids in Wisconsin are. With a farmer who was a Marine for a father and a teacher for a mother, I couldn’t bring  myself to even steal a swig of alcohol until was almost 16. By that time, I had acquaintances who were already going to drinking parties and getting high in the back woods. I was definitely not up for that. I didn’t want to disappoint my parents. This strict yet loving atmosphere is what I credit with staying out of drugs.

Also, the late onset of my depression symptoms made it so that I was able to develop some coping skills during my preteen years before I got to the point where my brain was attacking me. On top of that, I didn’t have the typical stresses that a teenage girl has. I didn’t start dating until I was 16, again because of my parents’ strict training. I was pretty much a nerd, so school and extra curriculars offered by the school were what I spent my time on. I did not care about fashion, being raised on a farm. Makeup wasn’t even an option for me because it was so expensive and I didn’t want to give up the time necessary to wear it; the same idea went for my hair. Basic and simple was my approach to all things “girly”. Having less stress about these sorts of things kept depression something far away until I was 16.

Being able to develop my brain normally for most of my early and mid teenage years was important for my impulse control. Although I still had slips of impulse control, I was able to reason easier than someone who has mental illness symptoms and substance use from a young age. I also knew that I didn’t want to deal with the consequences of use. I was too lazy to pay for fines and too easily bored to sit in a holding cell. Being sheltered in a small town kept me out of the rings of dealers and having lots of people watching out for me kept me accountable. I also hate feeling out of control of my own body.

It all adds up to me being able to be part of the non-users that experience psychiatric disorders. I’m grateful that I don’t have to wonder if my mental illness is a side effect of my drug use. About 6 months ago, I did notice that drinking lead me to feel more depressed for a few days afterward. You’d think I would have predicted that, considering I have my degree in Chemistry and had extensive classes on recreational drugs in my classes for a Criminalistics emphasis. I guess I hadn’t put 2-and-2 together until I was feeling like staying in bed for 17 hours after having a few beers the night before. Giving up drinking helped me for a time, but the depression symptoms held on. Psychiatric Disorders are not always created by recreational drugs, but are almost always exacerbated by them. I’m glad I noticed before it became danger level depression.

Mental illness and substance abuse are something that obviously go hand-in-hand. We have seen the repercussions of them both in our family. It’s helpful to both of us that we try to keep our noses pointed in the right direction and we have some great support systems to keep us out of a bad lifestyle. We’re hoping that will come soon for our boys too and they’ll be able to be more stable as they grow into the great young men they both are destined to be.

We’ll keep you informed on how our adventures in mental wellness are going. It’s not an easy road and it’s not immediate, but we will continue on this path. Stay safe, all, and we’ll see you on the road.

How does genetics fit in?

Genetics is the study of inheritance; it’s finding out what traits are handed down from lineage and what is environmental. Everyone is affected by genetics because we all have parents, who we got our genetic traits from.

Many factions of scientists track genetics through the generations. Most use a “genogram”for a reference for their research in one line or for one person. A genogram is like a family tree in that you put all of your ancestors, siblings, and relatives into the chart. Then, you track who had the trait in question and who may have had the trait but was unconfirmed. The creator may use interviews with family, birth & death records, as well as criminal records and past diaries to fill in the blanks. This is usually a good way to find out if a trait is environmentally induced or if it is genetic.

Talking about and noticing these types of traits gets me jazzed. I have my Bachelors of Science in Chemistry with an emphasis in DNA analysis & Criminalistics. Genetics was my favorite college course because the connections are so interesting. When you know a lot about a subject, it becomes more interesting. Plus, genetics is kind of a puzzle with clues as far as I’m concerned; it’s like a mystery novel.

It got even more interesting for me when Jeremy and I started talking about mental illness. He and I are both strong believers that mental illness can be both genetic and environmental. How this is described in the scientific world is usually comparison of expressivity and penetrance. In layman’s terms, expressivity is how much an individual displays a given gene trait and penetrance is how many individuals in a genetic pool are likely to have the gene for that trait.

This is where most average people hit a wall right now. There hasn’t been a phenomenal wealth of research done on the genetics of most mental illnesses. There are also a lot of barriers to proper diagnosis of mental illnesses because of the lack of research.

The National Institute of Mental Health, a division of the National Institute of Health (NIH) is trying to remedy that. They have greatly increased their research basis in the fields of mental health in the last 10 years. As a result, new medicines, treatments, and diagnosis protocols are being created every day.

Now, we are hoping to be a part of some of the research. The NIMH is currently running a research study called “Investigating the Genetics of Bipolar Disorder in those affected and their family members”. Finding this study has really opened our eyes to how our family members, primarily Jeremy’s family of origin, may be affected by Bipolar disorder. We’re hoping they will also partner with us to help with this study.

To really understand why we’re interested in it so highly, we need to talk some about Jeremy’s illness. He was diagnosed at 28 years old after years of struggle. He was divorced, had two children, worked the same job for 8 years, and had recently lost another relationship. When first treated, he was treated only for depression. He was given Effexor. As was common with this medication, when Jeremy still didn’t feel “well”, they increased his dosage. The more they increased it, the more his symptoms grew. He started having days and weeks of mania, very high anxiety and agitation, and delusional thoughts. One day he couldn’t take it anymore and he was taken to the hospital.

He ended up in an inpatient psychiatric treatment program. This is what you’d do for anyone with a severe illness; for severe pneumonia, they’d go to the PICU; for an infection they’d stay in the ICU. Think of inpatient treatment as the Intensive care unit for psychiatric cases. While there, he participated in many tests and many group sessions, as well as individual counseling. The psychiatrist determined that his response to Effexor was because he wasn’t depressed; he has bipolar disorder or cycling manic-depression.

Finding the right diagnosis makes it a lot easier to get the right treatment, but it is still not easy. Many of you have read my entry here about the mental illness in our life and the treatments we are currently seeking for it. There are hundreds more treatment options that we haven’t had to seek out yet. There are also a lot that we have tried that have not helped a lick. While in the hospital, the doctors tried many different medicines with Jeremy. Since going back on medication in 2012, there have been a few more added to the list. For some, they never find the “right” medicine for them. We are grateful that Jeremy’s found one that helped him.

Now, bring in the fact that his children struggle with illness too. The youngest is currently in residential treatment. Over the last month, the doctors there have reached out to see parallels between Jeremy’s evolution with mental illness and his son’s. In turn, they tried the medicine that’s been helping Jeremy. Lo and behold, his son has started to see some progress with impulse control and mood stabilization. That got me thinking of genetics.

When I started searching information on genetics and bipolar disorder, I found the study on the NIH site. Jeremy and I have discussed a little how his illness may be genetic. We have looked at his kids dealing with what the do, but we’ve also taken information from his family about some of Jeremy’s relatives and possible mental health issues.

Mental health is just becoming something that is viewed as a health issue instead of a stigmatized character flaw or weakness. In generations past, people were billed as “crazy”, “unstable”, or “psycho”. They were pushed out of society because of their odd behaviors or ideas. People with mental illness were avoided instead of being understood. There may well have been quite a few people who had some high functioning form of mental illness that were just outcast because of their odd life. Even in more recent generations, such as our parents, people with mental illness often didn’t seek diagnosis and treatment because of the stigma attached to it.

That’s what a genogram looks at. Jeremy and I both believe that doing this kind of exercise could be very telling for our family. We are hoping that this NIH study will accept him as part of the study; we are also hoping that some of his family members will join him in participating if they can. It would be telling to find out if there are genetic markers for bipolar disorder. To have a definitive way to diagnose this horrible disease would be one step in the right direction for a viable treatment.

Until then, we’ll keep doing what we can find that helps; we’ll be working on running the race that God has put in front of us. Stay safe out there, my friends. We’ll see you on the road.

When you fall off the wagon

We’re talking a proverbial wagon. Don’t worry; we did not go farm this weekend or anything. Although that would have been a great workout, had we done it.

A year ago, Jeremy and I were both very very dedicated to our health. As a result, he was at the lightest he had been in 20 years and I was at my strongest. We planned our meals ahead of time; we planned our exercise and followed through; we took our medicines daily; we spent time regularly doing self-care. All aspects of our life were kept at our healthiest options.

In March 2016, our youngest had some mental health issues start to take over his life. For the next 6 months, our life was filled with massive stress, doctors, and cops. The stress was too overwhelming for both of us. We doubled our counseling sessions. Jeremy and his doctor agreed that he probably should increase his mood stabilizer medicine. As a result of increasing too quickly, Jeremy got a dangerous rash and had to go off of the medicine that had worked for 2 years. This medicine is mostly to treat his bipolar disorder by keeping his moods in a “normal” range and help him focus better.

The new medicine to replace it was Lithium. Jeremy was on Lithium while he trained for the Twin Cities Marathon and I was training for the Rails to Trails half-marathon. A med change when there is little stress is hard. Noticing side effects and getting through the mood swings can be overwhelming. It’s triple hard when you have something that is a goal or some kind of stress in your life.

He made it through the marathon. He even had a pretty good time, even though he hadn’t trained as hard as he had hoped. For those that don’t do long distance races, there’s important information that you probably don’t know: the after crash of a race. Think of it like another life event: a wedding. You plan for months, you spend hours every day thinking of this event and planning for it. You may work to lose weight, make decorations, and pick out the perfect dress/DJ/location/cake. The day comes and you have a major high. You love your event and it goes off without a hitch. Afterward, you’re faced with a slight depression. You spend hours thinking “what do I do now?” and “There’s no purpose to my time anymore.” You looked forward to this event for months and now it’s just over. The same  happens with athletes after a major race/game/event.

Jeremy had that happen. On top of the medicine changes, Jeremy went through a pretty extreme depression. We don’t know if it was a side effect from the Lithium, a outcome from the kid stress, a downswing from going off of Lamictal, or the after-race crash. All we know is that his thoughts started racing, his self-talk got dark, and he became despondent about life in general. There were days that I had to help him get out of bed for work.

Needless to say, he was not doing any kind of exercise at that time. I was also still untreated for my depression. Between the two of us, it was hard for us to do enough thinking just to make ourselves eat, shower, and work each day. Eating healthy was the last thing in our heads. We were lucky if we made frozen pizza or mac & cheese; we weren’t even going to attempt salads.

So, what happens when someone is unable to be physically healthy? In our experience, not only does their physical health deteriorate, but their mental, spiritual, and financial health all suffer as well. It stands to reason that it’s hard to get out of that spiral. We had to keep going to work and we knew it. Thankfully, we were able to push through in that area.

We’re both pretty grateful that we have found some treatment that helped. I was put on Fluoxetine (Prozac) in December. It made it lots easier for me to get out of bed, do the work I need to do, and help him with what he needs. He also went back on Lamictal in December. This needs to be a very gradual process. Even though he is still at a very low dosage of this mood stabilizer, getting off the Lithium seems to have brought him up out of the suicidal thoughts and deep depression. We are functioning again, that’s the important thing.

Something to realize though is that “functioning” is not the same as “thriving”. It was something we talked about when we walked out on the land we plan to park on this summer. Jeremy’s lamotrigine dosage is still low enough that he’s not 100% stable. Counseling helps and the low dosage does help; it’s just not ideal yet. We are both about 30 lbs heavier than we would like to be. Neither of us are exercising as much as we need to. We’re still not eating as well as we’d like. Now that we’re functioning, we can start to address these issues that keep us from thriving. We may soon get back on track to be healthy in all parts of our life.

We start a new eating plan today with Clean & Simple Nutrition. We are hoping that a change in nutrition will give us a bit of a boost toward motivation. Within the month, we will both start training for our next races. We hope that you take some motivation to keep going, to get started, and to get healthy from our story. Stay safe and we’ll see you on the road.

God’s Plan

I’m a very spiritual person. Whoa… whoa… don’t run away yet. I swear I’m not going to start badmouthing anybody. I love people, whether you’re spiritual or not; atheist, agnostic, dont-care-ist… I accept you where you are and would love to hear your side and thoughts of anything we talk about.

I’m a born-again Christian. (Again, please don’t leave…. hear me out) For those of you that the term “born-again” sounds weird to, it is. Those of us that say that don’t mean we entered back into our mother’s womb. The idea is that we had a second “birthing” or awakening to God’s plan in our lives and that Jesus of Nazareth is our Messiah that will build and maintain the relationship between us and God. We have accepted this awakening as truth to us and apply it to our life.

I used to be very religious. I went to multiple Bible studies, church every single week, volunteered as a greeter, taught Sunday school, and attended Women’s retreats. I studied my Bible every single day and got down on myself if I didn’t. It’s been a waxing and waning kind of style throughout  my life. But this style of “religion” was not fulfilling to me. I felt like I was looking outside myself, outside the Holy Spirit, for my beliefs. There are verses in Hebrews 5 & 6 that talk about being yet a child and needing to be reminded of the basics over and over again. The most powerful for me in these chapters are Hebrews 5:11-13, “11 We have much to say about this, but it is hard to make it clear to you because you no longer try to understand. 12 In fact, though by this time you ought to be teachers, you need someone to teach you the elementary truths of God’s word all over again. You need milk, not solid food! 13 Anyone who lives on milk, being still an infant, is not acquainted with the teaching about righteousness.” I was doing all of these things, spending hours and hours and hours being taught by others. What I really needed was to lead myself; I needed to mature past being fed by others and start feeding myself. Let God carry me some instead of my faith in the schooling and leading of other people. 

I’m not very religious anymore. I want to know why we do the traditions we do and I still do some of them if I like them. I don’t regularly go to church. I do often watch and listen to podcasts from good preachers that are teaching more than the basics. I weigh what they say against what my study of the Bible has shown me. I feel reading my Bible, praying, and living my life the way Jesus would have is what God plans for me right now. I try to live every day of my life in a way that makes people think “There’s something different about her. I need to know what it is.” I will talk about my faith if people show some openness to it. I also will not often share the other parts of my religious beliefs with someone who doesn’t believe that Jesus is the Savior of the world from Hell and the grave unless they ask me.

Whatever you do with your spiritual life, do it because it’s right for you. Talk to your higher power (mine is the triune God of the Bible) or yourself if you don’t have one and really decide if this ambiguous “religion” that you’re practicing matches your values and beliefs.

For my own spiritual health, I need to be relying on God for my teaching and my growth. I felt I needed space from organized religion. I’m glad I’ve taken it. I have learned so much about myself in relation to God and His world through this process. I’ve learned to assess the reasons for a Bible book’s writing before I apply it to my life. I often ask myself “Was this written for all of humankind, including me? Or is this more of a history written for the people of that time?” That’s a big question. If you don’t know, maybe find that out before you read a book. There are so many things I’ve learned from asking that question. And ask yourself “Does the God/power that I’m modelling myself after show any of the traits I’m being told are part of my ‘religious duties’?” That’s an important one too. Celebrate with your spirit and you’ll find truth. Be kind, be patient, and show care. Stay safe, my friends, and we’ll see you on the road.

There are lots of those weeks

I’ve always been pretty high functioning and this addition of coping skills and recovery strategies hid my depression even more. From that point forward when depression hit, I could usually get it to start to go away in a few weeks. I’d give up drinking, plan some outings to “catch up” with friends (that were really just counseling sessions for me), change my eating habits and my exercise habits. I also forced myself to maintain my routine, even if I didn’t feel like  it. I studied at certain times; I went out with friends on certain days; I went to all work that I was scheduled for; I made a few dates with my boyfriend and eventually husband. Eventually I would always snap out of it somehow after 2-4 weeks.

3 years ago, I couldn’t handle how my environment was affecting my depression. It was happening more and more often, for longer and longer periods of time. Being part of a blended family contributed; having a family with multiple people with mental illness contributed; being in the beginning stages of starting a business contributed; being unable to care for my dogs contributed. I sat down with my husband and had a ultimatum. Something had to give and it had to be our mental health. We had to focus on treating ourselves with more respect and preventing others from treating us without respect.

First, we started with counseling. He and I did couples counseling at least monthly at the time. I did individual counseling once a month; he did individual counseling every other week. So, there was one week a month that we didn’t have counseling. He also saw a psychiatrist about his bipolar disorder and got some pharmaceutical help. After 6 months, they found a med that worked for him. I got my boyfriend back and the boys got a father who was really able to parent. My depression was under control and out of mind for a good 2 years.

With no apparent new/unique stimulus, a mild bout of depression started for me in the beginning of June 2016. I followed the same procedure that I had before: the routine, the scheduling, the eating habits, the exercise. A month came and went, then 6 weeks, then 2 months. At 2 months, I told our counselor that I thought I should see a doctor. The depression was deepening. I was having a hard time getting up, I wasn’t exercising the way I should, I was having a really hard time eating well, and I really wanted to drink but it made things worse.

Realize that finding a psychiatrist and getting antidepressants isn’t as easy for us as some. We do not currently have any health insurance. We are in the strange situation of making too much money for state Medicaid, but all of the plans are way out of our price range even with a subsidy. I can’t go to my insurance website to see “who’s covered”.

I started with the county Behavioral Health clinic. They have a sliding scale that currently has us at $0 for all services each month. What’s the problem? Well, the waiting list is 187 people long; I was informed that it would take at least a year to get through that long of a list. Plus, they had just lost one of their doctors, so it would be even longer until the end more than likely.

Next option, the free health clinic. St. Croix & Pierce counties join forces for a free clinic. It is specifically for people in our situation. For whatever reason, you can’t get Badgercare (Medicaid) but you don’t have insurance or can’t afford your deductible/co-pays. It’s held on Tuesday nights on a triage basis. Meaning, if what you have is not severe enough, you might not be seen. But, you fill out paperwork then you wait for your number to be called. The earlier you get there, the more likely you are to be seen.

I was pretty lucky. The only other people there when we went were a family full of sick kids and a few return customers just trying to get their prescriptions filled. (By the way, anything prescribed at the clinic can be picked up there for free as well.) I saw a doctor after waiting only 35 minutes. We talked about my history of depression, what I had been on before, and what side effects had happened before. He decided that a different SSRI might be the ticket. Prozac (fluoxetine) became my only pharmaceutical daily.

I can tell you that it helped within a week. I feel like myself, although I still do have one or two very mild side effects that are easily controlled with diet and exercise. I’ve been on it now for almost 2 months. I still have not had a call from the Behavioral Health psychiatrist, but I think I’ll be able to tell them that a GP doctor was more than capable of treating my simple mild depression.

I take my medicine and a bunch of supplements every day first thing in the morning. I try to continue my routines, but end up sleeping a little too much if I drink even small numbers of alcoholic drinks, as I did one day this week. We continue to do counseling regularly; right now, we see our counselor every other week for couples and the other weeks for individual.

I still have some pretty major hormonal swings thanks to my PCOS (my ovaries don’t quite work as effectively as my body needs them to). This week, I spent a day or so in a bit of a fog; I felt a bit like a zombie; Jeremy was genuinely concerned for my mental state; the counselor even noted a strangeness. As my hormones have moved to the next stage of the month, I have begun to feel better. This is the nature of mental illness and hormonal imbalance: everything affects it and you can never truly know just by the feeling if it’s caused by your surroundings/nutrition/habits or if it’s a flare that needs some pharmaceutical intervention until you’ve sat with it, dissected it, and tried changing some of those situations.

Now, I move back into my usual life and our wonderfully crazy life goes on. We make doctor appointments, work, and force ourselves to face every day. So, stay safe, readers. We will see you on the road.

It’s been one of those weeks

Today, I do not feel like writing in the blog. I did not feel like getting out of bed. I have felt like doing nothing all day long. This is not a unique day for me that I “just need to rest a little”. This is something that happens almost daily for me when my depression is in full swing. Thankfully, that’s not really what this was, but it was a small taste.

Depression has been a recurring part of my life for much of my life. It really got stuck in my brain during puberty. I was not a popular person; I was not unpopular either. I had friends, but they didn’t stick around a lot. I wasn’t invited to parties much. I did have one really dedicated friend until we found boys, then we stopped hanging out as much.

Boys were another beast altogether. Hormones raging, a teenage girl thinks that every by loves her if he looks her way. We hadn’t learned yet that boys are generally jerks until they are done with puberty. But, we blindly followed them into the abyss of teenage angst, first kisses, and riding in cars.

I would say that some of my depression taking hold harder was actually because of boys. My last high school boyfriend was fairly emotionally abusive. That put some wonderfully evil self-esteem breakers into my internal vocabulary. My first few dates in college were with a sex crazed jerk, which just reinforced the bad phrases cycling because of that bad boyfriend. Then, I had a few years of great guys that came and went. They weren’t ready to take on that emerging mental illness and what it entailed. I was engaged and it ended badly. I hit a downward slope. I dated some strange ones too. My depression got out of control.

At one point in college, I decided I needed some counseling and to see a psychiatrist. I had been cut from the ROTC, which was my only career plan. I was continually exploding at my then-boyfriend. I decided to quit rugby, which was my second love. I cried randomly; I hid in my room for days on end; I “forgot” to shower, brush my teeth, or eat. I recognized that this wasn’t normal activity, but I wasn’t sure what was wrong. So, I went to the school clinic and got on the list. The counselor was not great. I don’t even remember his name. I met with him twice. The doctor was just as subpar, I met with him twice as well 3 months apart. He prescribed Lexapro the first time, the second time he told me that I was probably past the worst of my disorder and that he didn’t recommend going off of the medication. I did anyway because I felt that I had a handle on my depression. I was mostly right.

You see, when someone is put onto an SSRI (Selective Serotonin Reuptake Inhibitor), it is recommended that they stay on it for at least a year to prevent relapse. Doctors are adamant in their recommendation of staying on the medication. I had felt that this depression was more connected to my situation than something long term. I thought all I needed was a quick jolt of happy and my life would go back to good. I was mostly right.

I dealt really well for another year. I changed schools, picked a different major, lost some weight, joined a church, got engaged, found an apartment, made some friends. Then, stress came and I did well. I thought I really had outwitted that doctor until a big tidal wave hit.

My fiance split up with me in April of that following year. I was devastated and shocked. So shocked that my sister (who was visiting that weekend) said that I didn’t seem like I even cared when I told her. I went through the motions until a month later when school was out for the summer; I moved back to my parents’ place; I grieved my future plans again. I spent most of that summer in a near fog. I worked as much as I could at the local group home company. Once late in the summer, one of my high school friends tried to set me up with his roommate and it was a horrible disaster. I was not sad, but I was not happy either. I was numb.

When I went back to the town of my school, I spent the first month being sad and lonely. I didn’t hang out with my friends; I didn’t have classes yet to distract me. I wallowed in my apartment eating pizza, drinking beer, and reading. Once school started, I was lucky enough that my friends didn’t let me wallow and I started to turn that corner again. I also had a great Bible study group that helped me learn some coping skills for my depression. The depression started to subside and I got back to my life.

 

 

If you check back in tomorrow, you can hear the rest of this story. See you on the road!