A Million Ideas

When life is busy, it’s easy to come up with ideas to write. Ideas jump out of the minute details of life. The only problem is that my brain doesn’t flow to typing when I am stressed.

You’ll remember that we recently (well, a few months ago) had Jason (16) move in with us in the RV. He’s had quite a few struggles so far in his short life and we were all hoping this would be a new start. At first, everything went along for a few weeks. Then, the bottom dropped out. I haven’t written about it because I just didn’t have the emotional energy.

Since that day, there have been multiple law enforcement involved events, as well as a few hospital visits. Jeremy took himself to the hospital twice, just to be sent home. These million ideas don’t flow from me, but they do get lodged in his head.

You see, with Jeremy’s mental disorders, he has a hard time letting things go. He also has a hard time sorting through the millions of ideas that already sit in his head. They all become jammed up when he gets stressed and collide in a horrific noise of anger and confusion. I have a feeling Jason has something like this happen too at times. Throughout the last few months, getting anything done was hard because their collisions were both happening simultaneously and being spewed out on each other.

Our place wasn’t a healthy location for Jason and it wasn’t healthy for us to have him living with us, just like his mom’s. It was toxic for everyone involved because of how he takes out his mental collisions and confusions. We (all of the parents in this situation) are not professionals and we are not equipped to deal with Jason’s myriad of mental illnesses, just as we wouldn’t be equipped to take care of a cancer surgery. Jeremy and Jason have both admitted that, when they’re amped up (excited, anxious, or angry), it’s hard for them to hear and see things as they really are. It’s not so much a loss of reality as it is a selective hearing that they don’t get to select. Then, that delusional state attacks them and tells them that they’re not good enough because they miss so much when they’re stressed.

That’s a dysfunction we’d like to change. We have multiple counseling appointments a week between all 3 of us and one of the regular focuses of these sessions is finding ways to deal with the delusions and the loss of memory tied to emotional dysregulation. #1 is to take breaks if anyone starts to get emotional. That’s hard when they’re already functioning lower because they’re the ones getting emotional.

That lower functioning has recently lead to some violence. Many forms of violence: physical, emotional, verbal, and property violence. Don’t know the difference? Ok, let’s address that:

  1. Physical violence is often what most people refer to as violence. In our house, it has recently come out as grabbing, shoving, punching, kicking, and spitting. Jeremy and Jason got into a physical altercation on December 4th. It resulted in Jason moving out of our tiny living spot into his brother’s house.
  2. Emotional violence. This can be paired with verbal violence, but does not entirely have to be. It could be a breach of trust. It could be violating someone’s privacy. It could be gaslighting. Intimidation is often an emotional violence tactic. It could be getting someone’s hopes up about something, then repeatedly disappointing them (most often a visit or something you tell them you’ll do with them). It could be just creating drama and picking verbal arguments. The emotional labor that’s necessary for these situations is staggering and makes it impossible to think of anything else.
  3. Verbal violence: Many people know this, but don’t talk about it as violence. It’s name calling. It’s swearing. It’s also gaslighting. It’s telling someone that their worth is nothing or that their hopes don’t matter. It’s the words someone uses to bring about emotional violence. It can be spoken, drawn, written, or digital. It can even be signed; with more than a middle finger sometimes. This violence has been part of our household for years. Many people don’t view this type of violence as as “bad” as other forms. Let me just tell you… It IS.
  4. Property violence is attacking your victim’s property in some way. Most recently in our house, stealing has happened. Jeremy came home from our vacation trip to find our business address locked, but had things moved around. Our electronics had been used. The Square credit card reader was stolen. The iPad had a factory reset done on it, deleting ALL of our apps and data. The safe had been moved, although not opened that we could tell because, thankfully, Jeremy had locked it. Jason is the only person other than us who knew where any spare keys were. He’s been hanging out with a man who has a felony credit card fraud on his record. I hope that man realizes that his parole can be revoked if Jason gets in trouble because of him. He could be charged with contributing to the delinquency of a minor if he let’s Jason keep coming around.
    Other property damage that’s happened is breaking or damaging someone else’s things. On the night that Jason attacked Jeremy, he also attacked Jeremy’s car. He was kicking and hitting it, which lead to dents. He was also purposely smoking in the car with the windows rolled down, so that it would smell up the car.  Jeremy and his oldest have put holes in walls before, both as intimidation tactics and property violence. Jason’s favorite form is to create more chaos. He will spread the contents of a car all over the yard or tear off the decoration from walls or remove the skirting from the RV. It’s a common occurrence that someone will steal money from others as a form of property violence. Property violence is a way to control someone just as much as emotional abuse, verbal abuse and physical abuse.

And that’s what it’s all about. It’s about controlling another person. That is disrespectful and creates many rifts in relationships.

I need to note here that this is NOT the same as a parent taking a child’s phone if they are doing something wrong or requiring a child to put money into an account to save for the future. It is not the same as a parent giving a child consequences if they are rude or disrespectful. It is not the same as an adult teaching a child by enforcing the rules. There are times when violence and consequences feel the same because no one wants either one to happen to them. The difference is that consequences are something that come because of our own actions. Violence is something someone enacts upon us.

We are sad that it didn’t work out how we had hoped to have Jason live with us. We will continue to love Jason and try to help him straighten his life out. We hope he will stop self-sabotaging by perpetuating violence and getting involved with people who lead him astray. That doesn’t mean we have to be in the way of the tornado until he starts to take responsibility. We will continue to work with his care team and hopefully, he will come clean and get straight before he has a consequence that is permanent.

So, it’s just Jeremy and I in the RV now. We are planning to continue to focus on our own health and wellness, trying always to help others when we can. Hopefully, you’ll join us. We’ll see you on the road.

Teenage Turmoil

Sometimes I can’t believe I wrote something. I went back to read the blog I wrote last week about Jason. I got a little teary and wanted to click “Like” on it, then realized that it’s kind of bad etiquette to like your own post.

Last time, I told you, “The primary medical treatment is through pharmaceuticals and anxiety control. I’ll try to discuss this soon when I talk about why the last year has been hard for Jason sometime this week.”

Jason has always had a little bit of a hard time making friends. Kids are harsh and tics are not the norm. It’s hard for children to look past a constant motion like that. On top of that, Jason’s always been extremely sweet. This didn’t work in his favor with young children. He was easily hurt and often went running back to the adults crying “Bully”. There were a few good apples that were very sweet as well. We had them over as much as possible.

This outcast persona in his life, Jason tried very very hard to make friends. He was pretty impressionable and fell to peer pressure regularly. As parents, none of us knew what to do. You’d think with 4 of us, we’d be able to come up with something. Alas, we kept playing defense on the latest scheme he and his friends came up with.

When a child is this easily swayed, they tend to fall in with friends that may not be the best choices. As children get older, these choices of friends start to create situations that may lead to bad choices in behavior. These bad choices in behavior can lead to addictions, whether it be drugs, sex, stealing, or fighting.

Jason fell into some rough crowds. As parents, we were happy he had friends, and unhappy with which ones they were. We tried to keep him safe by allowing less overnights and asking him to have them over to our house instead. We met the parents and discussed what the rules at our houses were. We pried into his life in ways that make all teens irritated and all parents more anxious.

No matter what we did, Jason out smarted us. You see, this sweet young man is also fairly smart. The IQ tests say he’s high average, but I know better. He’s good at playing dumb. It’s gotten him a lot of what he needed in his life. His mom felt needed because he couldn’t remember things. His dad felt like a protector because he “couldn’t take care of himself”. And he got out of doing wrong things by “forgetting” or “I didn’t mean to.” I’m not saying that every one of these times was a play; I just know that many of them were put on to keep us complacent.

Complacency is something all parents crave. We don’t want to nag, be anxious about your behavior, or check into the person’s alibi. We want you to be trustworthy in all you do so that we can just ride through parenthood without a hitch. And we all know that no one is perfect. We all make mistakes, especially when learning about life.

Learning about life is something Jason’s done his share of in the last 2 years. We’ve run into mental health issues, drug issues, stealing, and some questionable choices in how he handles school and other responsibilities. I don’t think these are uncommon. We’ve done the best we can to field the challenges as they come. Jason’s mom took most of the paperwork and agonizing because he’s lived with her most of the time for the last 3 years. We tried to help when we could, but there’s only so much we can do without undermining the other parent, which still happened from time to time because we’re not perfect either.

I want to go back to the sentence I brought forward from the last entry: The primary medical treatment is through pharmaceuticals and anxiety control. I’ll try to discuss this soon when I talk about why the last year has been hard for Jason sometime this week.

When a child starts extreme medical intervention at a young age, they generally start using different pharmaceutical drugs very young as well. Prescription drugs such as sleeping pills and anti-anxiety medicines are some of the most abused substances among teens. The availability of these drugs makes it that much easier to abuse. Plus, once you’ve realized that some substances affect you much stronger than other substances, you might start to try to find the “one” that “fixes” you.

Experimenting like this happens very commonly with children that have medical issues. The National Institute on Drug Abuse (NIDA) published an article in 2010 about Prescription Drug Abuse. Here’s what presenter, Nora D. Volkow M.D. had to say about teen drug abuse: “Nonmedical use among children and adolescents is particularly troublesome given that adolescence is the period of greatest risk not only for drug experimentation but also for developing addiction. At this stage the brain is still developing, and exposure to drugs could interfere with these carefully orchestrated changes. Research also shows adolescents abusing prescription drugs are twice as likely to have engaged in delinquent behavior and nearly three times as likely to have experienced an episode of major depression as teens who did not abuse prescription medications over the past year. Finally, several studies link the illicit use of prescription drugs with increased rates of cigarette smoking, heavy drinking, and marijuana and other illicit drug use in adolescents and young adults in the United States. Thus, prescription drug abuse may be part of a pattern of harmful behaviors engaged in by those at risk for substance use and other mental disorders.”

After some scrapes with the law over domestic violence, stealing, running away, and e-cig usage, Jason went into a residential treatment program last October. He was there until June. During that time, he was watched pretty much 24/7. It was grueling and transformative. I think all 4 of us parents started to feel like we had our caring, sweet Jason back.

Jason went from treatment back to his mom’s house. It went well for a time. He was part of an intensive day program for the summer, he got a job, he even had a girlfriend for a while. His mom dealt with all of this in stride for the most part. Once the day program was over, the county still hadn’t set up some of the services they had been going to get before the move home. Jason and his mom both struggled to keep it together. They did well for the most part.

Then, a few weeks ago, Jason started school. The added stress of school, work, and pleasing his parents seem to have become too much. Just over a week ago, Jason was found unresponsive by a friends’ parents. He had taken some prescription drugs from his friend’s prescription pills. Thankfully, he did not take enough to kill himself, but he was in the hospital for a night and his parents were terrified that he might not make it.

When they were done at the hospital, Jeremy and his ex wife decided it might be better for Jason to live with us. That is how we acquired our new resident. He is enrolled in a high school that is 45 miles from where we are parked right now. Getting him to school at a reasonable time before we have to go to work has been the biggest struggle. Picking him up after school has been just as hard.

With all of that, we are doing pretty well, though. There has been disagreements about rules, screen usage, and space. Those are bound to happen, no matter how much space you have or what your teen’s been through. I think those are natural discussions at all households have. But we love each other and all 3 of us are working really hard to gain trust and put the past behind us. We’re hoping to move The Girl Next Door closer to Jason’s school without taking us out of range of the jobs that we currently hold. It should be an adventure. With that adventure coming, we’ll see you on the road.

We have Been Doing

Obviously, I’ve been having a  hard time getting here to write. I love writing for you all and I love doing all the things. I can’t always do both.

Since our California trip Here>>>>Golden State of Mind
We have been as busy as summer allows. Jeremy was training and massaging, our youngest got out of treatment and we transitioned him back into his home life, and I’ve been working on finding organization in The Girl Next Door, along with my full time job.

The weekend after we got back, we met my family of origin in Mauston, WI at some cabins on the lake. Seeing all of my nieces and my nephew was refreshing and exciting. Great conversations were had, as well as some delicious s’mores. We had fun playing on the beach and catching up. Babies are part of what make these trips worth it (although they’re not the only thing!)

When we returned, there were presents waiting for us. We got new hoses for waste removal. With the new hoses, we don’t have to move The Girl Next Door to reach the septic on the edge of the property. Jeremy took the time to spray off and open all of the awnings, as well as spraying down the rest of the siding and windows. Thankfully, I remembered to close them before he started.

Sometime in the middle of all of this, Jeremy noticed that he had a pain in his knee. It didn’t seem to be the type of pain that he could take a day off and ice it to help it get better. The pain persisted through weeks of lightening his training. The problem with it was that he was signed up to participate in the Shell Lake Triathlon on July 22. In the end, he gave away his registration for Shell Lake Tri AND sold the registration for Twin Cities Marathon in October. He saw a doctor finally this week, got a knee brace, and has been forced to do no training for at least a few weeks, when he’ll take a nice long ride with my mom. No impact training (read: no running!) for a month. I think we’ll probably have a pretty irritable Jeremy in a week or two. He’ll be seeing a sports medicine doctor soon and hopefully be able to figure out what’s been causing his pain. Once that happens, he’ll be back on the road, I’m sure.

Speaking of being on the road, that’s something I’m loving about working where I do. Aveda recently started a campaign for the employees that includes a Wellness challenge, a free fitness tracker, and a website for accountability. I saw this as a sign that I need to really put some more effort into my health. After having to cancel my Spartan Sprint race in June, I hadn’t been training much and I had started to feel down about my progress. I’m really thankful that Aveda offers this type of thing for us and their care for their employees is one of the main reasons I came back here.

Jeremy’s also been still in the midst of a med change. We are looking at the end of the transition, which is nice. He’s started to be able to focus and calm himself long enough to do self care again, to see how to make healthy nutritional choices, and to take his medicine on time regularly. He’s recognizing the things that are bothering him and getting to the point where he can really voice his needs. It’s an amazing thing to see how the medicine helps him become himself again; the man I love returns. This is a good point to be at because of his physical injuries. Now he’ll be able to force himself to really listen to what the doctors have to say.

Last weekend, Jeremy got the motivation to finish fixing the exhaust on The Girl Next Door. She now has 2 full exhaust pipes and purrs like a kitten…. a very large kitten with Glasspacks. Either way, she’s lovely and idles at a rumble instead of a roar.

He also decided today to take out the original RV futon so that we can add a newer, more fashionable, storage-heavy futon/sleeper to the living room.  He gave it  to someone from Facebook and the rest is history.  Here’s to “renovating the guest room”.

So, Jeremy will be sitting out for a while, but I’ll be out training again. I’ll be adding some hiking regularly, as well as a few runs and strength work. I hope I will have time to start writing something worth reading again. Until then, I’ll be doing all the things worth writing. Come back to catch up on our adventures; we’ll see you on the road.

In Need of Progress Reminders

I think that sometimes, God reminds us of how far we’ve come by sending us back to where we were for a short time.

This weekend was an awesome weekend for the most part. Friday was a day fully dedicated to working on The Girl Next Door. I’ll write a whole entry about this week’s work on her soon. Let’s just say it was a lot of work and very satisfying.

Saturday, we worked on her in the morning. After doing as much as we could, we left to attend the Minneapolis RV vacation & Camping show. We had a TON of fun there. Next year, we will probably take either one whole day or come back for more than one time. We really enjoyed looking at new models of Class A, B, C motorhomes and travel trailers. We’re not much for pop-ups or 5th wheels, so we stayed out of them. We dreamed about what we might buy in the future and got a few ideas for The Girl Next Door. Catch us in 10 years when we’ll buy the 2017 Thor Vegas RUV Class A or a 2016 Pleasureway  Plateau XLMB Class B. They were both glorious. Plus, we were super excited to get to meet The FitRV after months of watching their videos.

After the show, we had some yummy food at Good Earth. We have found very good paleo options at stores that celebrate local suppliers and organic food. I had a wonderful blood orange smoothie, a Go Green lemonade (kale, spinach, & honey added), and some yummy BBQ pork chops over greens. Jeremy had a chopped salad that looked delish. And when the delightful dinner was over, we went to see one of our favorite local bands play. Dancing the night away is just as fun at 34 as it was at 21. I just don’t drink anymore, so I enjoy the music that much more. Good for Gary plays so many great dance tunes that all 4 of our party got on the floor. There was even a return of the BackStreet Boys that Jeremy danced to. What a goofy guy on the dance floor; that’s why I love him.

At 2am, we rolled into our friend Sarah’s place to stay the remainder of the night. All 4 of us quickly passed out, not being used to this kind of late night. We all slept pretty soundly and woke by 9am. Erin and I went to a local church, Hosannah! Church in Shakopee. It was definitely a style of church that I enjoy and I think I might go back the next time we stay over at Sarah’s too. Church gave way to breakfast; Wampachs had a great special for both of us: cajun eggs benedict. Yum. After some more hanging out at Sarah’s house, Jeremy, Erin, and I headed to a late lunch at Merlin’s Pub where there was mussels, tater tots, and sausages galore.

That was the extent of the wonderful weekend we had. Once we got home, things got hairy. On the way home, Jeremy had some conversations with his son and ex-wife. This tends to get him on the defensive in the first place. The anxiety of co-parenting can often be overwhelming. On top of the anxiety of this talk, he got more than one instance yesterday of his decision making ability being undermined by other adults. When he got home, the stress had taken over his ability to cope. He lost control of his temper and went into a tailspin. There was some yelling and swearing. I was not devoid of responsibility when it comes to the ramped up state of things. Between both of us not sleeping as much as we should and both letting go of control of creating our own food, we did not take good care of our bodies. I was caught very off guard by this turn of events.

You see, I had begun to take Jeremy’s good state of mind for granted. For over a week, he’s seemed very stable. He brought me breakfast in bed three times last week. He laughed, danced, and joked around. He worked hard, played hard, and slept when he could. We had a phenomenal weekend of happy times, fun work, and building our future. It’s easy to fall into a feeling of security in that. It’s easy to miss the early signs of a trigger. It’s easy to take for granted the stable times when they last for a few days or more. That state of complacency makes the meltdown that much harder.

Boy, it was hard for me. I did not deal well the way I have in the past. As a result, Jeremy and I spent the night struggling alone. Trying to be around each other was way too hard. We did apologize to each other; our mental health and relationship were able to turn around after some cool down time. It was just too tense to spend the time together. We’re lucky to have quite a few options when it comes to nights like that. We have friends and family that understand our situation, we have an office that gives us some space to cool off, and we have a whole bunch of great places to stay in our town. Right now, we also have a second bedroom in our apartment. We’re lucky enough even that The Girl Next Door even has extra beds in the living area of the coach, so we could sleep separately if we need it. That was one of the selling points for me: extra space if we need to sleep in more than one bed, whether that is for guests, the boys, or a night break.

We are still both very blessed to have each other. We are good at apologizing; we are both good at making amends. Over the years, we’ve learned to forgive. That’s part of our faith, but even more, it’s necessary to keep our marriage afloat. When mental illness is rampant in a marriage, forgiveness becomes an every day event. There are times that the forgiveness is small; there are times it is very very significant as this one was. Sometimes it is as little as forgiving the dishes only getting half put away or dropping something on the floor. Other times, one of us is apologizing for a major monetary hit from damage done in a rage or in an anxious outburst. Sometimes we risk our relationship by saying hurtful things. Other times we are remorseful for our massive insecurities stemming from past abuses. No matter what is going on, we have both agreed to communicate and forgive. I am bone-of-his-bone and flesh-of-his-flesh; we are united by marriage and need to work through those inconsistencies until we are one.

No matter what kinds of things hurt you, be ready to forgive. That is something that will always help both your mental and spiritual health. Embrace letting the desire for revenge go. Open yourself to new opportunities by releasing cherished wounds. Let yourself chase your dreams and we’ll see you out on the road.

How does genetics fit in?

Genetics is the study of inheritance; it’s finding out what traits are handed down from lineage and what is environmental. Everyone is affected by genetics because we all have parents, who we got our genetic traits from.

Many factions of scientists track genetics through the generations. Most use a “genogram”for a reference for their research in one line or for one person. A genogram is like a family tree in that you put all of your ancestors, siblings, and relatives into the chart. Then, you track who had the trait in question and who may have had the trait but was unconfirmed. The creator may use interviews with family, birth & death records, as well as criminal records and past diaries to fill in the blanks. This is usually a good way to find out if a trait is environmentally induced or if it is genetic.

Talking about and noticing these types of traits gets me jazzed. I have my Bachelors of Science in Chemistry with an emphasis in DNA analysis & Criminalistics. Genetics was my favorite college course because the connections are so interesting. When you know a lot about a subject, it becomes more interesting. Plus, genetics is kind of a puzzle with clues as far as I’m concerned; it’s like a mystery novel.

It got even more interesting for me when Jeremy and I started talking about mental illness. He and I are both strong believers that mental illness can be both genetic and environmental. How this is described in the scientific world is usually comparison of expressivity and penetrance. In layman’s terms, expressivity is how much an individual displays a given gene trait and penetrance is how many individuals in a genetic pool are likely to have the gene for that trait.

This is where most average people hit a wall right now. There hasn’t been a phenomenal wealth of research done on the genetics of most mental illnesses. There are also a lot of barriers to proper diagnosis of mental illnesses because of the lack of research.

The National Institute of Mental Health, a division of the National Institute of Health (NIH) is trying to remedy that. They have greatly increased their research basis in the fields of mental health in the last 10 years. As a result, new medicines, treatments, and diagnosis protocols are being created every day.

Now, we are hoping to be a part of some of the research. The NIMH is currently running a research study called “Investigating the Genetics of Bipolar Disorder in those affected and their family members”. Finding this study has really opened our eyes to how our family members, primarily Jeremy’s family of origin, may be affected by Bipolar disorder. We’re hoping they will also partner with us to help with this study.

To really understand why we’re interested in it so highly, we need to talk some about Jeremy’s illness. He was diagnosed at 28 years old after years of struggle. He was divorced, had two children, worked the same job for 8 years, and had recently lost another relationship. When first treated, he was treated only for depression. He was given Effexor. As was common with this medication, when Jeremy still didn’t feel “well”, they increased his dosage. The more they increased it, the more his symptoms grew. He started having days and weeks of mania, very high anxiety and agitation, and delusional thoughts. One day he couldn’t take it anymore and he was taken to the hospital.

He ended up in an inpatient psychiatric treatment program. This is what you’d do for anyone with a severe illness; for severe pneumonia, they’d go to the PICU; for an infection they’d stay in the ICU. Think of inpatient treatment as the Intensive care unit for psychiatric cases. While there, he participated in many tests and many group sessions, as well as individual counseling. The psychiatrist determined that his response to Effexor was because he wasn’t depressed; he has bipolar disorder or cycling manic-depression.

Finding the right diagnosis makes it a lot easier to get the right treatment, but it is still not easy. Many of you have read my entry here about the mental illness in our life and the treatments we are currently seeking for it. There are hundreds more treatment options that we haven’t had to seek out yet. There are also a lot that we have tried that have not helped a lick. While in the hospital, the doctors tried many different medicines with Jeremy. Since going back on medication in 2012, there have been a few more added to the list. For some, they never find the “right” medicine for them. We are grateful that Jeremy’s found one that helped him.

Now, bring in the fact that his children struggle with illness too. The youngest is currently in residential treatment. Over the last month, the doctors there have reached out to see parallels between Jeremy’s evolution with mental illness and his son’s. In turn, they tried the medicine that’s been helping Jeremy. Lo and behold, his son has started to see some progress with impulse control and mood stabilization. That got me thinking of genetics.

When I started searching information on genetics and bipolar disorder, I found the study on the NIH site. Jeremy and I have discussed a little how his illness may be genetic. We have looked at his kids dealing with what the do, but we’ve also taken information from his family about some of Jeremy’s relatives and possible mental health issues.

Mental health is just becoming something that is viewed as a health issue instead of a stigmatized character flaw or weakness. In generations past, people were billed as “crazy”, “unstable”, or “psycho”. They were pushed out of society because of their odd behaviors or ideas. People with mental illness were avoided instead of being understood. There may well have been quite a few people who had some high functioning form of mental illness that were just outcast because of their odd life. Even in more recent generations, such as our parents, people with mental illness often didn’t seek diagnosis and treatment because of the stigma attached to it.

That’s what a genogram looks at. Jeremy and I both believe that doing this kind of exercise could be very telling for our family. We are hoping that this NIH study will accept him as part of the study; we are also hoping that some of his family members will join him in participating if they can. It would be telling to find out if there are genetic markers for bipolar disorder. To have a definitive way to diagnose this horrible disease would be one step in the right direction for a viable treatment.

Until then, we’ll keep doing what we can find that helps; we’ll be working on running the race that God has put in front of us. Stay safe out there, my friends. We’ll see you on the road.

When you fall off the wagon

We’re talking a proverbial wagon. Don’t worry; we did not go farm this weekend or anything. Although that would have been a great workout, had we done it.

A year ago, Jeremy and I were both very very dedicated to our health. As a result, he was at the lightest he had been in 20 years and I was at my strongest. We planned our meals ahead of time; we planned our exercise and followed through; we took our medicines daily; we spent time regularly doing self-care. All aspects of our life were kept at our healthiest options.

In March 2016, our youngest had some mental health issues start to take over his life. For the next 6 months, our life was filled with massive stress, doctors, and cops. The stress was too overwhelming for both of us. We doubled our counseling sessions. Jeremy and his doctor agreed that he probably should increase his mood stabilizer medicine. As a result of increasing too quickly, Jeremy got a dangerous rash and had to go off of the medicine that had worked for 2 years. This medicine is mostly to treat his bipolar disorder by keeping his moods in a “normal” range and help him focus better.

The new medicine to replace it was Lithium. Jeremy was on Lithium while he trained for the Twin Cities Marathon and I was training for the Rails to Trails half-marathon. A med change when there is little stress is hard. Noticing side effects and getting through the mood swings can be overwhelming. It’s triple hard when you have something that is a goal or some kind of stress in your life.

He made it through the marathon. He even had a pretty good time, even though he hadn’t trained as hard as he had hoped. For those that don’t do long distance races, there’s important information that you probably don’t know: the after crash of a race. Think of it like another life event: a wedding. You plan for months, you spend hours every day thinking of this event and planning for it. You may work to lose weight, make decorations, and pick out the perfect dress/DJ/location/cake. The day comes and you have a major high. You love your event and it goes off without a hitch. Afterward, you’re faced with a slight depression. You spend hours thinking “what do I do now?” and “There’s no purpose to my time anymore.” You looked forward to this event for months and now it’s just over. The same  happens with athletes after a major race/game/event.

Jeremy had that happen. On top of the medicine changes, Jeremy went through a pretty extreme depression. We don’t know if it was a side effect from the Lithium, a outcome from the kid stress, a downswing from going off of Lamictal, or the after-race crash. All we know is that his thoughts started racing, his self-talk got dark, and he became despondent about life in general. There were days that I had to help him get out of bed for work.

Needless to say, he was not doing any kind of exercise at that time. I was also still untreated for my depression. Between the two of us, it was hard for us to do enough thinking just to make ourselves eat, shower, and work each day. Eating healthy was the last thing in our heads. We were lucky if we made frozen pizza or mac & cheese; we weren’t even going to attempt salads.

So, what happens when someone is unable to be physically healthy? In our experience, not only does their physical health deteriorate, but their mental, spiritual, and financial health all suffer as well. It stands to reason that it’s hard to get out of that spiral. We had to keep going to work and we knew it. Thankfully, we were able to push through in that area.

We’re both pretty grateful that we have found some treatment that helped. I was put on Fluoxetine (Prozac) in December. It made it lots easier for me to get out of bed, do the work I need to do, and help him with what he needs. He also went back on Lamictal in December. This needs to be a very gradual process. Even though he is still at a very low dosage of this mood stabilizer, getting off the Lithium seems to have brought him up out of the suicidal thoughts and deep depression. We are functioning again, that’s the important thing.

Something to realize though is that “functioning” is not the same as “thriving”. It was something we talked about when we walked out on the land we plan to park on this summer. Jeremy’s lamotrigine dosage is still low enough that he’s not 100% stable. Counseling helps and the low dosage does help; it’s just not ideal yet. We are both about 30 lbs heavier than we would like to be. Neither of us are exercising as much as we need to. We’re still not eating as well as we’d like. Now that we’re functioning, we can start to address these issues that keep us from thriving. We may soon get back on track to be healthy in all parts of our life.

We start a new eating plan today with Clean & Simple Nutrition. We are hoping that a change in nutrition will give us a bit of a boost toward motivation. Within the month, we will both start training for our next races. We hope that you take some motivation to keep going, to get started, and to get healthy from our story. Stay safe and we’ll see you on the road.

There are lots of those weeks

I’ve always been pretty high functioning and this addition of coping skills and recovery strategies hid my depression even more. From that point forward when depression hit, I could usually get it to start to go away in a few weeks. I’d give up drinking, plan some outings to “catch up” with friends (that were really just counseling sessions for me), change my eating habits and my exercise habits. I also forced myself to maintain my routine, even if I didn’t feel like  it. I studied at certain times; I went out with friends on certain days; I went to all work that I was scheduled for; I made a few dates with my boyfriend and eventually husband. Eventually I would always snap out of it somehow after 2-4 weeks.

3 years ago, I couldn’t handle how my environment was affecting my depression. It was happening more and more often, for longer and longer periods of time. Being part of a blended family contributed; having a family with multiple people with mental illness contributed; being in the beginning stages of starting a business contributed; being unable to care for my dogs contributed. I sat down with my husband and had a ultimatum. Something had to give and it had to be our mental health. We had to focus on treating ourselves with more respect and preventing others from treating us without respect.

First, we started with counseling. He and I did couples counseling at least monthly at the time. I did individual counseling once a month; he did individual counseling every other week. So, there was one week a month that we didn’t have counseling. He also saw a psychiatrist about his bipolar disorder and got some pharmaceutical help. After 6 months, they found a med that worked for him. I got my boyfriend back and the boys got a father who was really able to parent. My depression was under control and out of mind for a good 2 years.

With no apparent new/unique stimulus, a mild bout of depression started for me in the beginning of June 2016. I followed the same procedure that I had before: the routine, the scheduling, the eating habits, the exercise. A month came and went, then 6 weeks, then 2 months. At 2 months, I told our counselor that I thought I should see a doctor. The depression was deepening. I was having a hard time getting up, I wasn’t exercising the way I should, I was having a really hard time eating well, and I really wanted to drink but it made things worse.

Realize that finding a psychiatrist and getting antidepressants isn’t as easy for us as some. We do not currently have any health insurance. We are in the strange situation of making too much money for state Medicaid, but all of the plans are way out of our price range even with a subsidy. I can’t go to my insurance website to see “who’s covered”.

I started with the county Behavioral Health clinic. They have a sliding scale that currently has us at $0 for all services each month. What’s the problem? Well, the waiting list is 187 people long; I was informed that it would take at least a year to get through that long of a list. Plus, they had just lost one of their doctors, so it would be even longer until the end more than likely.

Next option, the free health clinic. St. Croix & Pierce counties join forces for a free clinic. It is specifically for people in our situation. For whatever reason, you can’t get Badgercare (Medicaid) but you don’t have insurance or can’t afford your deductible/co-pays. It’s held on Tuesday nights on a triage basis. Meaning, if what you have is not severe enough, you might not be seen. But, you fill out paperwork then you wait for your number to be called. The earlier you get there, the more likely you are to be seen.

I was pretty lucky. The only other people there when we went were a family full of sick kids and a few return customers just trying to get their prescriptions filled. (By the way, anything prescribed at the clinic can be picked up there for free as well.) I saw a doctor after waiting only 35 minutes. We talked about my history of depression, what I had been on before, and what side effects had happened before. He decided that a different SSRI might be the ticket. Prozac (fluoxetine) became my only pharmaceutical daily.

I can tell you that it helped within a week. I feel like myself, although I still do have one or two very mild side effects that are easily controlled with diet and exercise. I’ve been on it now for almost 2 months. I still have not had a call from the Behavioral Health psychiatrist, but I think I’ll be able to tell them that a GP doctor was more than capable of treating my simple mild depression.

I take my medicine and a bunch of supplements every day first thing in the morning. I try to continue my routines, but end up sleeping a little too much if I drink even small numbers of alcoholic drinks, as I did one day this week. We continue to do counseling regularly; right now, we see our counselor every other week for couples and the other weeks for individual.

I still have some pretty major hormonal swings thanks to my PCOS (my ovaries don’t quite work as effectively as my body needs them to). This week, I spent a day or so in a bit of a fog; I felt a bit like a zombie; Jeremy was genuinely concerned for my mental state; the counselor even noted a strangeness. As my hormones have moved to the next stage of the month, I have begun to feel better. This is the nature of mental illness and hormonal imbalance: everything affects it and you can never truly know just by the feeling if it’s caused by your surroundings/nutrition/habits or if it’s a flare that needs some pharmaceutical intervention until you’ve sat with it, dissected it, and tried changing some of those situations.

Now, I move back into my usual life and our wonderfully crazy life goes on. We make doctor appointments, work, and force ourselves to face every day. So, stay safe, readers. We will see you on the road.

It’s been one of those weeks

Today, I do not feel like writing in the blog. I did not feel like getting out of bed. I have felt like doing nothing all day long. This is not a unique day for me that I “just need to rest a little”. This is something that happens almost daily for me when my depression is in full swing. Thankfully, that’s not really what this was, but it was a small taste.

Depression has been a recurring part of my life for much of my life. It really got stuck in my brain during puberty. I was not a popular person; I was not unpopular either. I had friends, but they didn’t stick around a lot. I wasn’t invited to parties much. I did have one really dedicated friend until we found boys, then we stopped hanging out as much.

Boys were another beast altogether. Hormones raging, a teenage girl thinks that every by loves her if he looks her way. We hadn’t learned yet that boys are generally jerks until they are done with puberty. But, we blindly followed them into the abyss of teenage angst, first kisses, and riding in cars.

I would say that some of my depression taking hold harder was actually because of boys. My last high school boyfriend was fairly emotionally abusive. That put some wonderfully evil self-esteem breakers into my internal vocabulary. My first few dates in college were with a sex crazed jerk, which just reinforced the bad phrases cycling because of that bad boyfriend. Then, I had a few years of great guys that came and went. They weren’t ready to take on that emerging mental illness and what it entailed. I was engaged and it ended badly. I hit a downward slope. I dated some strange ones too. My depression got out of control.

At one point in college, I decided I needed some counseling and to see a psychiatrist. I had been cut from the ROTC, which was my only career plan. I was continually exploding at my then-boyfriend. I decided to quit rugby, which was my second love. I cried randomly; I hid in my room for days on end; I “forgot” to shower, brush my teeth, or eat. I recognized that this wasn’t normal activity, but I wasn’t sure what was wrong. So, I went to the school clinic and got on the list. The counselor was not great. I don’t even remember his name. I met with him twice. The doctor was just as subpar, I met with him twice as well 3 months apart. He prescribed Lexapro the first time, the second time he told me that I was probably past the worst of my disorder and that he didn’t recommend going off of the medication. I did anyway because I felt that I had a handle on my depression. I was mostly right.

You see, when someone is put onto an SSRI (Selective Serotonin Reuptake Inhibitor), it is recommended that they stay on it for at least a year to prevent relapse. Doctors are adamant in their recommendation of staying on the medication. I had felt that this depression was more connected to my situation than something long term. I thought all I needed was a quick jolt of happy and my life would go back to good. I was mostly right.

I dealt really well for another year. I changed schools, picked a different major, lost some weight, joined a church, got engaged, found an apartment, made some friends. Then, stress came and I did well. I thought I really had outwitted that doctor until a big tidal wave hit.

My fiance split up with me in April of that following year. I was devastated and shocked. So shocked that my sister (who was visiting that weekend) said that I didn’t seem like I even cared when I told her. I went through the motions until a month later when school was out for the summer; I moved back to my parents’ place; I grieved my future plans again. I spent most of that summer in a near fog. I worked as much as I could at the local group home company. Once late in the summer, one of my high school friends tried to set me up with his roommate and it was a horrible disaster. I was not sad, but I was not happy either. I was numb.

When I went back to the town of my school, I spent the first month being sad and lonely. I didn’t hang out with my friends; I didn’t have classes yet to distract me. I wallowed in my apartment eating pizza, drinking beer, and reading. Once school started, I was lucky enough that my friends didn’t let me wallow and I started to turn that corner again. I also had a great Bible study group that helped me learn some coping skills for my depression. The depression started to subside and I got back to my life.

 

 

If you check back in tomorrow, you can hear the rest of this story. See you on the road!